Ethan is a wonderfully active 5 year old with Steroid Dependent Nephrotic Syndrome. It is highly likely that he will develop progressive kidney failure in the future.
Cole is an adorable 6 year old boy with X-Linked Adrenoleukodystrophy which is a genetic disorder that occurs primarily in males. It mainly affects the nervous system and the adrenal glands. He was hospitalized for almost 2 months. Cole recently had a bone marrow transplant which was 95% successful.
Gabriel is a bright, personable 10-year old boy with Stage IV Medulloblastoma (brain tumor). These types of tumors are invasive and rapidly growing tumors that, unlike most brain tumors, spread through the cerebrospinal fluid and frequently metastasize to different locations in the brain and spine. When he was diagnosed, the cancer had already spread to […]
Dustin is a charming, talented 17 year old suffering from a traumatic brain injury resulting from a long boarding accident back in October where he was “hitching” on the bumper of a car, not wearing a helmet and fell. Doctors were forced to remove half of his skull to relieve pressure (it has since been […]
Please meet darling 18 month old Jocelynn (with her brother). Jocelynn has relapsed neuroblastoma. She was diagnosed with stage 2 neuroblastoma in August 2012 at 5 months of age. She was initially treated with surgical intervention alone as her prognosis was such that chemo was not required. Sadly, in February 2013 she experienced a relapse […]
Logan is a 17-year-old boy with Muscular Dystrophy. Logan has had multiple spinal infusions and his disease has caused a great disruption to his quality of life. Logan has required a lot of medical treatment in his 17 years of life. Multiple hospitalizations, doctors’ appointments with multiple providers. Logan’s pain has become a major issue […]
Jeremiah was born with this rare disease and is one of two who experience this disease in Colorado. When he was born, it was a very normal and uneventful birth until within a few minutes of him coming into the world, his skin actually tore apart from his chest to his abdomen. His mom said […]
Bryanna is a wonderful 10 year old girl with Complex Regional Pain Syndrome. This is a chronic systemic disease, which brings severe pain, swelling and changes in the skin. Fortunately they diagnosed her early in life and began treatment as it will only worsen over time. Bryanna is being raised by her Aunt, and with […]
Jacob is a 12-year-old boy with AML. Since his diagnosis, Jacob has undergone 4 intense rounds of therapy which included 4 hospitalizations lasting nearly 45 days each. Jacob completed chemotherapy in July however continues to require ongoing care by his oncologist nearly weekly at this point. As Jacob was finishing chemotherapy in July, his mother […]
Elizabeth is a sweet little 2 year old girl who was born prematurely and diagnosed with a complex medical condition at birth (hemolytic anemia, significant reflux/oral deficits – gtube fed, abnormal neurologic symptoms in which she breath-holds, transfusion dependent – every 3 to 4 weeks, ongoing thrombocytopenia and splenomegaly – now being worked up for […]