Jeremiah was born with this rare disease and is one of two who experience this disease in Colorado. When he was born, it was a very normal and uneventful birth until within a few minutes of him coming into the world, his skin actually tore apart from his chest to his abdomen. His mom said the doctors instantly put him down and jumped away as they had never ever seen anything like this before. He immediately bled internally and with the persistence of the doctors, they were able to get him stabilized.
From then on, this skin disease plagues this little boy and something as tiny as a scratch can hinder his ability to even function. Just prior to us getting there today, his little sister accidentally shut a door on his foot leaving him totally unable to walk and his toes were completely “riding on each other” making it look like he really only had one toe. If you look closely at the picture, you will see his hands in which are full of scales and he is partially paralyzed. That is just a small representation of what his total body looks like.